Well where do I start? Yesterday was my follow up with the specialist. Keep in mind I have not seen him since the 'cyst' bombshell, so this was the follow-up appointment that I had made last week. O yeah and to back up a little bit, I made a very long and frustrating trip to emerg last week. The pain is and was unmanageable, I had no idea what else to do so I went in to emerg hoping that they would or could help me.
Well the trip was the biggest waste of 7 hours. The doc there wouldn't refer me to the on call gynecologist, wouldn't do another ultrasound to see if the cyst is growing and only wanted to offer me pain meds. The visit ended in me telling him not to bother writing the prescription because I wasn't there for pain control and surly wasn't going to take Tylenol 3's when I'm allergic to the codeine in it. O yeah and an ignorant bitcthface nurse did a pregnancy test, when I asked her (2 hours later) what the results were - she said 'Negative, aren't you re-leaved?' Seriously she did! I had no response for her, I think she should consider herself lucky. So on to the follow-up.
I went in to see my doc (Dr. Frankenstein), he was worried about what was happening and asked why I hadn't gone to emerg to get this looked after. I told him that I did and the doctor there just wanted to give me pain meds. Dr. Frankenstein asked for him name because he will be following up. Dr. Frankenstein wanted me to have an ultrasound right away to see if the cyst has grown or why it is causing so much pain. In his office there is not an ultrasound machine, so he asked me to go directly to emerg and he would call and let them know I was on my way. He laid out the options for me of what would happen from here. They would first do the ultrasound and see what is happening. I may have to go in for surgery, which is a last resort because of the recent surgeries on my uterus already. They may want to admit me for observation and pain control. Or they will treat the pain as an outpatient and be monitored very closely.
Off I headed to emerg. I think on the way I had a mini break down. I was alone - my husband at work and my mother (who is also a great support) was with her father. I called my mom (because it is very hard to get a hold of the DH at work, he arranged to call me after the appointment, so I knew I would be hearing from him soon). My mom said she would meet me right away in emerg and my DH showed up shortly after her.
Dr. Frankenstein wanted the ultrasound primary on my right ovary (where the cyst is) to see if it was twisting around the ovary, cutting off the blood supply. If that were to happen, I could loose my right ovary. Emerg knew I was on my way, it was hard for me to go after my last experience, and I was going back to the same hospital's emerg. They got me into a waiting room and the doctor came in and told me that once ultrasound had time they would come and get me, but for now nothing to eat or drink and no more going pee because I would need a full bladder for the ultrasound. Well two hours later and a very full bladder, they finally came and got me for an ultrasound.
The lady doing the ultrasound was fantastic, and let me see the screen this time. There is only one cyst, still on my right ovary. It is a bit larger than what it was the last time I had the ultrasound. She said that this size cyst is quite large and goes quite high up and would be comparable to about the size of a grapefruit. They wanted my doctor to be notified immediately because the cyst is still getting a constant blood supply (I still don't know what that means).
There was a lot more waiting and then finally the emerg doctor came and told me that they are waiting to get in contact with Dr. Frankenstein to give direction with what to do next. So out of no where I hear the voice of my old doctor (the one who did the first surgery). The emerg doc came and told me that they can't get a hold of my doctor but that Dr. So-and-so (my old specialist) will come and talk to me.
I was so releaved to know that someone who knows me and what is going on is going to see me. He was so happy to see me again. So anyways to make a long story short, they don't want to do surgery right now because there has been 2 surgeries in the past year and I am so close to getting my period they think that the cyst may go down after that.
He gave my another prescription for pain meds to manage for now and also good old hormones again. He gave me Provera to bring AF which will hopefully help resolve the cyst. He warned me that when AF comes likely it will be very painful if the cyst drains. I have to follow up with Dr. So-and-so in 10 or 15 days and they will repeat the ultrasound in his office. If the pain in the mean time changes or become unmanageable I have to go directly back to emerg for another ultrasound to make sure the cyst is not twisting around my ovary.
I will blog later about the sudden doctor change. Dr. So-and-so has taken me back on as a 'challenge'. Dr. Frankenstein called me when I got home from emerg to review the results, he was okay that Dr. So-and-so wants me to follow up with him. The advantage with this is that Dr. So-and-so has an ultrasound right in his office, so no more trips to emerg to get an ultrasound that day.
So that's where things stand today, the pain is still very real and I wait some more - this time for AF to show up. I don't think I've wished this much for AF in years. Hopefully AF works some sort of wonders and helps the cyst go down.